Click here to check if anything new just came in.
November 13 2010
November 10 2010
A Tampa Blog #Multiplesclerosis
http://www.recreatingtampa.com/2010/10/22/caleb-and-ms/
Spiny Tim is a haunting journal of a local artist’s battle with primary progressive multiple sclerosis (PPMS).
“It is difficult for me to write about my condition, because to commit to paper, so to speak, is to make it real. And even now, I am loath to make it real.
“Every morning I wake diminished, and I think to myself: if I don’t get any worse than this, then I will be able to go on. I will be able to relieve myself, put some food in my stomach, take care of the dog and the cat, and go be productive for someone. Every morning I wake to find that my hands are more useless, curled, and insensate, add that my legs are more distant meat objects, useful as stilts, perhaps, but not much else.
“And every morning I wake with fewer words.”
Spiny Tim once kept a blog titled Calebism, where he posted occasional images of his art.
October 11 2010
More About MS Hug, Baclofen #multiplesclerosis
It feels like a tight elastic girdle made of giant ace bandages, right down to the delusion of sweaty abrasion, from nipple level to pelvis. The pressure is weird, but bearable, but the illusory abrasion feels like my whole torso is being sanded with rock salt, and yet there is a numb Novocaine layer of flesh beneath it.
But, then, my hands feel the same, plus extra numbness to the bone, which distracts me from “the ms hug.”
Oh,& I take a buttload of Baclofen I get mail-order from India, but I am going broke, and as a broke USA citizen, I am anticipating some bad withdrawals. Which kind of sucks, considering Baclofen has no fun side effects at all.
Related articles
- Is It Wrong To Be Numb? #multiplesclerosis (spinytim.com)
- Multiple sclerosis – All Information (umm.edu)
Maybe Soup is currently being updated? I'll try again automatically in a few seconds...
