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December 11 2010
November 10 2010
A Tampa Blog #Multiplesclerosis
http://www.recreatingtampa.com/2010/10/22/caleb-and-ms/
Spiny Tim is a haunting journal of a local artist’s battle with primary progressive multiple sclerosis (PPMS).
“It is difficult for me to write about my condition, because to commit to paper, so to speak, is to make it real. And even now, I am loath to make it real.
“Every morning I wake diminished, and I think to myself: if I don’t get any worse than this, then I will be able to go on. I will be able to relieve myself, put some food in my stomach, take care of the dog and the cat, and go be productive for someone. Every morning I wake to find that my hands are more useless, curled, and insensate, add that my legs are more distant meat objects, useful as stilts, perhaps, but not much else.
“And every morning I wake with fewer words.”
Spiny Tim once kept a blog titled Calebism, where he posted occasional images of his art.
October 14 2010
A brief history of my illness.
About 18 months ago I began to experience numbness and tingling in my hands. Since I had no other symptoms and since the sensation was very much like carpal tunnel syndrome, I did a little research and concluded that my problem was most likely cubital tunnel syndrome. By last fall I was having a little difficulty writing my bicycle. By last Christmas I was dragging 1 foot. By last spring I concluded that I had primary progressive multiple sclerosis or something very much like it.
Now I am about a 6.5 on the multiple sclerosis disability scale. I’ve never had a remission; I have never awoken better than when I went to sleep.
My hands haven’t worked for some time, so I am learning to use voice recognition software to write with. Please forgive any irregularities.
Related articles
- Depression, Suicide and Multiple Sclerosis #MultipleSclerosis (spinytim.com)
- Ah, Crap… (spinytim.com)
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